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The Walking Wall

Did you know that you could help patients by purchasing an art book?  For every copy sold of The Walking Wall: 73 Cents to the Walking Gallery $10 is donated to the PatientTravel Fund of the Society for Participatory Medicine a 501c3 non-profit. Yep.  10 dollars.  Now you might not think ten dollars is a lot, but it is all the proceeds on the book after costs are covered.  HISA (Health Informatics Society of Australia) published the book with additional help from the Cerner Corporation.  I wrote the text and created the art depicted in the book.  We make no profit from it.  We want those funds to go to the society so patients will be able to attend more conferences and events.   This book was the wonderful idea of Louise Schaper, CEO of HISA. When she asked me where I would like to donate the proceeds, I told her…

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A, B, C, D or F Leapfrog and the Hospital Safety Score

Three years and eight months ago I sat at a computer trying to compare facilities in the greater metropolitan area while my husband Fred was hospitalized in Maryland with stage 4-kidney cancer.  I could find very little information then.  I knew very little about how to compare facilities or search the internet.  But I quickly learned about the concept of a “pay wall.”  As a family whose primary income was in jeopardy due to a late stage cancer diagnosis, a pay wall was determent enough to shut down my search capacity. A year later in the spring of 2010 Ted Eytan, MD showed me a link to a health data visualization competition that promoted by Sunlight Labs entitled “Design for America.”  Designers, programmers, medical professionals and artists were asked to create visualizations of health data that compared communities and depicted hospital quality using open and free government data sets. I…

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The Sleeper

A couple weeks ago, I was listening to NPR and was amazed.  Well, I am often amazed listening to NPR, but this was in reference to a specific program.  It was Science Friday, the reputable Science Friday and they were discussing crustal displacement theory.   My late husband Fred and I were introduced to the theory through the book Fingerprints of the Gods in 1995.  This was a really edgy theory proposed by  Charles H. Hapgood.  Charles even shared his theory with Albert Einstien in the 1950’s and received his support.  Earth crust displacement theory was considered rather odd by much of the scientific establishment.  Unlike plate tectonic theory, the gradual movement of the continents, crustal displacement theory supposes that dramatic sudden shifts can occur.  Imagine if you will, the sections of an orange floating loose within its peel.  Imagine that peel suddenly shifting 155 degrees around.  That would be a…

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Attack of the Living Meme

The Holliday family had a great Halloween this year.  When my late husband Fred was alive, we had so much fun with this holiday.  I always made our costumes and they were very creative, complex and based upon a family theme.  There was an Egyptian year, a Marvel year and of course a Halloween theme around Doctor Who.  We would trick or treat down the avenue by the toy store where I worked as a happy family. Then Fred died and it was so hard to enjoy Halloween. I would do my best to sew costumes with a large hole in my heart.  Last year I even missed trick or treating with the kids as I flew cross-country to give a speech in Oregon.  But this year Halloween was great!  Our theme was internet memes.  6-year-old Isaac was a TNTblock from Minecraft, 14-year-old Freddie was a creepypasta known as Slenderman…

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Dear patient advocates, e-patients and caregivers,   We’re reaching out with an invitation to design a national patient agenda…created by the best, brightest, most committed and passionate doers and thinkers among us. That means you!   Who are we? Patients/advocates/activists/caregivers like you. We sense it is the time to change the future of healthcare quality and WE WANT TO BE A BIGGER PART OF IT. What ideas to you have to fix health care? What do say that no one’s listening to? What  are you doing that works, that you could share with others? Please read below and add your 2 cents – or your 73.  The more of us take part, the more we can accomplish and more impact we can have. Thanks!     Background:   In an effort to stem the tide of unacceptable medical harm, the federal government’s Partnership for Patients initiative seeks to reduce healthcare-acquired conditions…